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Yann Joly

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Yann Joly

Professor, Centre of Genomics and Policy

Email: yann.joly@mcgill.ca
Phone: (514) 398-7286

740 Dr Penfield Ave, Room 5101
Montréal, Québec, Canada, H3A 0G1

Website

Prof. Joly has acquired international recognition in health law, intellectual property and bioethics in the context of modern medicine. Since 2009, he has made a significant contribution to the research, development and successful implementation of controlled access mechanisms for two large academic consortia in the field of genomics: The International Cancer Genome Consortium (ICGC) (for which he is currently the Data Access Officer) and the International Human Epigenome Consortium (IHEC). These mechanisms are now used by emerging organizations and consortia as models. He is also the author of over 120 peer-reviewed publications in top legal, ethical and scientific journals, as well as numerous book chapters and two books. For the past decade, he has served as a legal and ethical consultant to numerous national and international organizations, companies and para-governmental organizations. He was invited to provide his expert testimony on the topic of genetic discrimination before the Council of Europe (2007) and the Canadian Senate Standing Committee on Human Rights (2014). He was also a Member of the 2007-2009 panel of the Canadian Academy of Health Sciences on the return on investments in health research. In 2012, he received the “Innovation Merit” award of the Quebec Bar (Lawyer Emeritus) for his contribution to the fields of privacy and biomedicine. In 2016, Prof. Joly was the recipient of the McGill University Department of Human Genetics’ Teaching Excellence Award and, in 2017, he became a fellow of the Canadian Academy of Health Sciences (CAHS).

Recent Publications

  • Zieger, M, Joly, Y, D'Amato, ME. On the ethics of informed consent in genetic data collected before 1997. Nature. 2024;627 (8003):271. doi: 10.1038/d41586-024-00762-w. PubMed PMID:38472325 .
  • Lougheed, DR, Liu, H, Aracena, KA, Grégoire, R, Pacis, A, Pastinen, T et al.. EpiVar Browser: advanced exploration of epigenomics data under controlled access. Bioinformatics. 2024;40 (3):. doi: 10.1093/bioinformatics/btae136. PubMed PMID:38449289 PubMed Central PMC10963074.
  • Ma, Y, Achiche, S, Pomey, MP, Paquette, J, Adjtoutah, N, Vicente, S et al.. Adapting and Evaluating an AI-Based Chatbot Through Patient and Stakeholder Engagement to Provide Information for Different Health Conditions: Master Protocol for an Adaptive Platform Trial (the MARVIN Chatbots Study). JMIR Res Protoc. 2024;13 :e54668. doi: 10.2196/54668. PubMed PMID:38349734 PubMed Central PMC10900097.
  • Plourde, L, Chang, SL, Farzin, H, Gagnon, P, Hébert, J, Foxman, R et al.. Social acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based survey. Palliat Med. 2024;38 (2):272-278. doi: 10.1177/02692163231222430. PubMed PMID:38253521 PubMed Central PMC10865753.
  • Dalpé, G, Huerne, K, Dupras, C, Cheung, K, Palmour, N, Winkler, E et al.. Defusing the legal and ethical minefield of epigenetic applications in the military, defense, and security context. J Law Biosci. 2023;10 (2):lsad034. doi: 10.1093/jlb/lsad034. PubMed PMID:38098975 PubMed Central PMC10719446.
  • Knoppers, BM, Chase, S, Joly, Y, Zawati, M, Thorogood, A. Responsible Processing and Sharing of Genomic Data: Bringing Health Technologies Industries to the Table. Am J Bioeth. 2023;23 (11):33-35. doi: 10.1080/15265161.2023.2256254. PubMed PMID:37879015 .
  • Huerne, K, Jackson, SS, Lall, R, Palmour, N, Berner, AM, Dupras, C et al.. Studies in Cancer Epigenetics through a Sex and Gendered Lens: A Comprehensive Scoping Review. Cancers (Basel). 2023;15 (17):. doi: 10.3390/cancers15174207. PubMed PMID:37686484 PubMed Central PMC10486657.
  • Lougheed, DR, Liu, H, Aracena, KA, Grégoire, R, Pacis, A, Pastinen, T et al.. EpiVar Browser: advanced exploration of epigenomics data under controlled access. bioRxiv. 2023; :. doi: 10.1101/2023.08.03.551309. PubMed PMID:37577719 PubMed Central PMC10418203.
  • Lapointe, J, Côté, JM, Mbuya-Bienge, C, Dorval, M, Pashayan, N, Chiquette, J et al.. Canadian Healthcare Professionals' Views and Attitudes toward Risk-Stratified Breast Cancer Screening. J Pers Med. 2023;13 (7):. doi: 10.3390/jpm13071027. PubMed PMID:37511640 PubMed Central PMC10381377.
  • Moreno, PG, Knoppers, T, Zawati, MH, Lang, M, Knoppers, BM, Wolfson, M et al.. Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context. Hum Genet. 2023;142 (7):981-994. doi: 10.1007/s00439-023-02576-8. PubMed PMID:37365297 PubMed Central PMC10329579.
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