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Ma’n Zawati

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Ma’n Zawati

Associate Professor, Centre of Genomics and Policy

Email: man.zawati@mcgill.ca
Phone: (514) 398-4806

740 Dr Penfield Ave, Room 5210
Montréal, Québec, Canada, H3A 0G1

Website

Ma’n H. Zawati (LL.B., LL.M., Ph.D. (DCL)) is an Associate Professor at McGill University’s Faculty of Medicine and the Research Director of the Centre of Genomics and Policy in the Department of Human Genetics. He is also an Associate Member in the Department of Medicine, the Department of Equity, Ethics and Policy and the Faculty of Law. His work is interdisciplinary, drawing together perspectives from law, ethics, genomics, and policy. His research mainly focuses on the legal, ethical and policy dimensions of health research and clinical care, with a special focus on data sharing, governance, professional liability, and the use of novel technologies (e.g., mhealth apps, WGS, WES). During COVID-19, Prof. Zawati was instrumental in setting up the ethics governance for multiple initiatives, including the Quebec COVID19 Biobank (BQC19), CGEn’s national HostSeq project and the COVID-19 Immunity Task Force. His work has facilitated access and use of data and samples across jurisdictions.

Prof. Zawati is funded by the Fonds de Recherche du Québec, CIHR, Genome Quebec and Genome Canada. He’s also a frequent presenter on a variety of the most critical and topical issues in healthcare and the biosciences. He has appeared at 180+ international conferences, symposia, meetings, and has shared his expertise with universities, research ethics boards and law firms. He sits on the Board of Directors of Exactis Innovation and the Human Cell Atlas. Prof. Zawati has published more than 100 book chapters and peer reviewed articles in leading publications such as Nature Reviews Genetics, the Canadian Medical Association Journal, and the Journal of Law and the Biosciences. In 2015, he was awarded the Queen Elizabeth II Diamond Jubilee Scholarship (stay at Oxford University) and was named a Royal Society of Canada Delegate for the IAP Young Scientists of the Year international symposium. In 2021, Prof. Zawati received his J1 FRQS Career Award. In 2022, he published his first book: “Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era” and in 2023, he was elected Member of McGill University’s Senate.

Recent Publications

  • Kirby, E, Bernier, A, Guigó, R, Wold, B, Arzuaga, F, Kusunose, M et al.. Data sharing ethics toolkit: The Human Cell Atlas. Nat Commun. 2024;15 (1):9901. doi: 10.1038/s41467-024-54300-3. PubMed PMID:39567529 PubMed Central PMC11579383.
  • Goh, ES, Chad, L, Richer, J, Bombard, Y, Mighton, C, Agatep, R et al.. Canadian College of Medical Geneticists: clinical practice advisory document - responsibility to recontact for reinterpretation of clinical genetic testing. J Med Genet. 2024;61 (12):1123-1131. doi: 10.1136/jmg-2024-110330. PubMed PMID:39362754 .
  • Uberoi, D, Dalpé, G, Cheung, K, Kondrup, E, Palmour, N, Arawi, T et al.. The Key Features of a Genetic Nondiscrimination Policy: A Delphi Consensus Statement. JAMA Netw Open. 2024;7 (9):e2435355. doi: 10.1001/jamanetworkopen.2024.35355. PubMed PMID:39325459 .
  • Stevens, YY, Zawati, MH. Transparency, Evaluation and Going From "Ethics-Washing" to Enforceable Regulation: On Machine Learning-Driven Clinician Decision Aids. Am J Bioeth. 2024;24 (9):117-120. doi: 10.1080/15265161.2024.2377123. PubMed PMID:39225998 .
  • Knoppers, T, Haley, CE, Patrinos, D, Zawati, MH. "Protection for the public, better use of resources and clearer lines": Interviews with genetic counselors and their colleagues on the need for regulation in Quebec. J Genet Couns. 2024; :. doi: 10.1002/jgc4.1960. PubMed PMID:39165077 .
  • Farag, N, Noë, A, Patrinos, D, Zawati, MH. Mapping the Apps: Ethical and Legal Issues with Crowdsourced Smartphone Data using mHealth Applications. Asian Bioeth Rev. 2024;16 (3):437-470. doi: 10.1007/s41649-024-00296-3. PubMed PMID:39022376 PubMed Central PMC11250705.
  • Rothstein, MA, Zimmerer, KC, Andanda, P, Arawi, T, Arzuaga, F, Chen, H et al.. International scope of biomedical research ethics review. Science. 2024;385 (6705):145-147. doi: 10.1126/science.adp6277. PubMed PMID:38991077 .
  • Rojas, SK, Adam, S, GenCOUNSEL Study, Elliott, AM, Zawati, MH. Genetic counselors outside of the genetics clinic: Roles, practices, and ethico-legal implications in light of lagging legal recognition across Canada. J Genet Couns. 2024; :. doi: 10.1002/jgc4.1943. PubMed PMID:38946299 .
  • Zawati, MH, Lang, M. Does an App a Day Keep the Doctor Away? AI Symptom Checker Applications, Entrenched Bias, and Professional Responsibility. J Med Internet Res. 2024;26 :e50344. doi: 10.2196/50344. PubMed PMID:38838309 PubMed Central PMC11187504.
  • Birch, P, Beauchesne, R, Bansback, N, Boelman, C, Connolly, M, Demos, M et al.. Where there is no genetic counselor: An online decision-aid supports the majority of parents' diagnostic genomic testing choices for their children. Genet Med. 2024;26 (9):101173. doi: 10.1016/j.gim.2024.101173. PubMed PMID:38828700 .
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